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I was first diagnosed with leiomyosarcoma in 1996. They have since changed the name to GIST, an acronym for gastrointestinal stromal tumor. It’s a type of sarcoma. The only treatment is surgery. The life expectancy is, on average, six months to a year. I first had tumors in the small intestine, and they extracted that.

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Your doctor may find them when you have a test for something else. Larger tumors can cause bleeding. You might vomit blood or see it in your stool. Due to the nonspecific symptoms and signs, it is difficult to diagnose jejunal GIST preoperatively. Although specific signs and symptoms are absent [ 17 ], most GISTs (70%) are symptomatic, mainly presenting with vague abdominal pain [ 5 I was first diagnosed with leiomyosarcoma in 1996.

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It’s a type of sarcoma. The only treatment is surgery.

People with a GIST often do not experience any specific symptoms or signs. When symptoms do occur, they may be vague. Or, the cause of a symptom may be a different medical condition that is not a tumor. Pain or discomfort in the abdomen. A mass in the abdomen that you can feel with your hand. Bowel obstruction. Nausea and vomiting. Vomiting blood

Primarily genetic, GIST is a rare type of sarcoma found in the gastrointestinal tract. The symptoms of GIST can have a large impact on your life because they affect your GI tract.

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Some people with GISTs feel tired because they’ve lost blood from the tumor into their stool. Your doctor will ask questions about your symptoms and do a physical exam.
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If your GIST is metastatic, meaning it has spread, we might want to treat you medically first (with chemotherapy treatment) to shrink your tumor before operating.

The only treatment is surgery. The life expectancy is, on average, six months to a year. I first had tumors in the small intestine, and they extracted that. GIST is defined as becoming “resistant” when it no longer responds to the drug(s) that are used to treat it. Most of these drugs belong to the class of tyrosine kinase inhibitors (TKI’s.).